According to multiple doctors, the only interventions that are possible for me is possibly repairing my aorta if the stitching would hold.  No hip replacements, no knee surgery, no shoulder replacement, not even hernia repairs.  All they can do is pills and therapy.  I did get an excellent end-of-life counselor, since they finally officially are using the t-word.  What's interesting is the knowledge I could go for years like this, or just drop dead where I sit.

I'm not too concerned about it-I made peace with my impending death years ago.  I've lived under this shadow for a good while now.  What I want is my body to hold together long enough to enjoy my time left instead of being stuck in bed, like I have been so much this winter.  A nasty fall and a hip dislocation turned into repeated dislocations and swelling.  I'm getting over that now, and I can walk a little more, but I'll never be very good at that any more after the second stroke.

Pray for my wife as well, she fights with her own health and the knowledge that I can't be cured or really even helped very much.  She's got a positive ANA and every symptom of lupus, and I need my strength to take care of her.  She married me knowing this disease at my severity is a death sentence, and she's not leaving my side for anything, apparently.  

I'm more concerned for my friends and family than I am for me.  I know where I'm headed.  It's who I will leave behind, and quite possibly without warning.  It's a lot to wrap your head around, to be told that there's nothing they can do and you're just thirty-three.  God will get me when He's good and ready.  I just want to be ready too.

Ed prayers continue for God's grace and mercy. May He give you wisdom on how to lead, guide, and bless your family and friends. May His Spirit continue to give you peace and joy for your strength. May God give grace and healing to your wife so that you can rest in the knowledge that she will be well when you go home to your new ALIVE body in the presence of Him who is perfect love.

Anyone keeping up with your varied posts would have drawn a similar conclusion on your outcome. The good news is that NONE of us know when, but we're all in the same boat...

You've shared some of your wife's challenges as well and we'll continue to keep her in our prayers as well.  

My uncle, struggling with bone cancer, told me that "Death is God's perfect healing"...

As you say, those left behind have to be infused by your faith and see the trust and peace in your eyes and demeanor...and it will be contagious.

Prayers for you to find peace and enjoy whatever time is yet allowed you.  

Keep the Son in your eyes, Brother!

Your faith is inspiring. I'm only a couple years older than you and I too have a wife who suffers from lupus. Today, I was reading the book of Isaiah and your post reminded me of 57:1

"The righteous perish, and no one ponders it in his heart; devout men are taken away and no one understands that the righteous are taken away to be spared from evil."

We never know Gods upper story plan for our lower story lives or what fate he's saving us from.

My family and I will add you and your wife to our prayers for healing, mercy and peace.

JD

oh and if there is anything specific you would like us to pray for, please let me know. PM or otherwise

You have the right attitude to embrace Gods will and to cherish what you have.

Prayers for you and your wife.

More prayers sent for both of you.

My prayers for you and your wife. It's good to know Jesus is with us. He is our peace.

We can do all things through Christ Jesus..... My prayers continue for you my friend.......