Trad Gang

Guys ,
   I know David may not want to put this out here cause I think that he thinks he's asked too many times for prayers with the PS numbers that have been a roller coaster so to speak.
  He can spit,holler,kick me in the rear later but I got an update from him with his latest spike in his numbers and it was high . He is having some pain as well that is giving him a fit .
  He's always there for us and I know with his move to TN. He may only have a few close neighbors and friends to lean on but I do know we are a Brotherhood of believers  in Jesus Christ and we call out to Him to ask our Father ,Creator and the Holy Spirit  as One to heal Doc Noc and remove All cancer cells causing these numbers to spike .
   Doc is a caring man towards folks and a patriarch to many here with his words of Wisdom .
  Please if you will keep this Man Doc Noc in your prayers continuously if you will.
                   :pray:
   

Lord hear our prayers... :pray:

Much need prayers offered up for Doc.
Shick

Oh, my...

I know TG doesn't send emails on new posts so I pop in time to time to see what might be new--- and there I find this...

That's kind of you, Keith... thank you... Prayers are always good...

yea, they'd stuck me on some tiny pills that made my boobies sore and are supposed to kill off the testosterone and starve the Prostate cancer...well, the side effects were real, but it didn't do it's job...the PSA went from 0.66 in April to 12.5 in mid July indicating, I'm told, that is an aggressive type prostate cancer... till the got me into radiation therapy some of the cells had already lodged in my spine near my shoulder blades... or so the bone and PET scans showed...

Now with the PSA jumping UP again, the re-did the 2 scans and lo and behold the cancer in the spine is growing and has now moved out into the right side ribs...

They want to see if they can get the cost forgiveness on LUPRON shots and stronger oral meds both of which are rather expensive...

Dunno what to think... I see an increase in pain and imbalance in low and mid back but I ain't DEAD yet...

I see the oncology radiologist Tues and the URO doc again Thurs to see what he's learned on the new meds, costs, etc...

I don't wanna go broke chasing a few months of living poorly and alone... :(:( Decisions, decisions... :(

As Keith said, not many folks around here I'm close to and most are at least my age or older...

Either God's already made a decision and it's just going to take time to play out or?

Prayers are always appreciated...

Thank you, Brother Keith!

Prayers up to the greatest Physician. Hang in there buddy.

Doc Noc, Prayers sent to you from Illinois. :pray: :pray: :pray:

Thanks to you, Scott for your many years of loyal support and thank you also Mr. Turner... I appreciate both your prayers and encouragement

Doggone it, Doc! My prayers will continue as scheduled, my friend. :pray: :pray: :pray: :pray: :pray: :pray:

Prayers and best wishes are offered.

Thanks to all you gents...this is the skeleton in all our closets...

I see the Radiologist/oncologist tomorrow AM and the URO doc on Thursday...not notice today that my Rx company (for medicare) said the provider did something WRONG to get approval on the new oral med

So if these things don't go well I'll take that as an answer to prayers for discernment!

More prayers sent

Continued Prayers Doc  :pray:

Thanks, Guys! :)

I saw the Radiology/oncologist today...He thinks he can ease the spot tween shoulders in spine...

he's always very confident.

Also got call from URO doc they pushed my appt back a week till NEXT thursday... the oral meds were not approved but the LUPRON shot was...both sound like they could raise cane.

I'll see how it goes but I am not inclined to live in agony just to beat (hopefully) cancer, as in my limited observation, once you've had it, it gits ya! :o :saywhat:

Prayers sent!

Thanks, Richard.

Got word from this bizarre 877# that it's a specialty house for Cancer meds and the pills alone are $2700 a MONTH...I told him no way in hell! They have some "foundations" they'll canvass to see about cost reduction but I am NOT chasing rainbows... now to wait and see...

Then there is the also expensive Lupron shots at $8k/year...nah... they ordered it but we'll have to see what the cost is cause I'm not going to spend all I got on wishful thinking... So far, they've been wrong about everything and I am not enamored with the care

Doc,
    I can understand your frustration on the cost of meds etc. and praying there is some sort of reduction you can get . I know you don't want to be a " Test" monkey to see if this or that will work but maybe someone here might know of another alternative to try?
   I'll keep  :pray:

Thanks, Keith...got another call from the medication outfit in NY state...

The gal I just hung up with tells me the 7 foundations ran out of money but I should qualify for funding from the drug maker...we''ll see...

Due to Covid they're all working from home so theyre emailing me stuff and we'll see if I can print, sign and get copies of stuff they need

Sorry to read of the setbacks Doc. You'll continue to be in my thoughts and prayers Sir.

Thank you, Paul/KS...

Tis what it tis...

I'm not paying bunches of money and HOPE that it works... they said everything to this point would work and they were wrong, so Only God is in Control, Right? :)

Prayers are free, Doc. And you've got mine. :pray:

Much appreciated, Kirk!!!

Whatever is to be, will be!

Been an interesting couple days as I've been engaged with some specialty Rx place in NY state that is canvassing the mfg of the oral meds...

they're now waiting on the URO doc to do stuff to make application... My URO appt was pushed back till NEXT THURS for the Lupron shot... I don't know how any of this crap will affect me physically, but living alone I have to stay vertical to function...

que serra sera...

Doc so sorry to hear all that you are going thru. This is the first time I have been on here in a while. My internet is down at the house and I am doing this from my camp. Please know that I have not forgotten you and you are constantly in my thoughts and prayers.  Keep the Faith and as you always say Keep the (Son) in your eyes.

LR, from camp, no less?  Gracious!

That might be above and beyond... but I thank you....

I guess I get a bit "down" at times, but deep down I know whatever is already decided by a power I cannot understand... Or, Comprehend

Well, heck: hadn't been here for a week or so and I come back to this. Darn it Doc, don't you give up. You're needed here and probably  places we have no idea about. And a person with a story is an inspiration. And I know you've inspired lots of  people here so, you ain't giving up. God needs you in heaven, but HE needs you more on earth as do we, so up and at 'em Tiger.
God, Bless our brother and heal him from top to bottom and stem to stern. Get rid of that hellish substance within him and give him health, strength , peace and wisdom. Lord, prove to the doctors that it's You who is the healer and not them. Make this another chapter in his testimony and make him more of an encouragement to other people. Thank you Father for your blessings. In Jesus name. Amen. :pray: :clapper: :thumbsup:

will be praying.

Bob,

Those are fine, fine sentiments, but I suppose God is the final say on my whereabouts and who needs me... now for me to get my own head on straight about all that...

I'm not giving up but then on the other hand, these medical folks here have been wrong at every turn on this ailment and now the URO doc wants me to take new oral meds that run $2700/MONTH... There is some specialty pharmacy making application to the makers of the meds for Zero cost and the LUPRON shots are $8K/ year so I'm not doing that either lest they can get the cost waived...

I figure they've been wrong at every turn and my body doesn't like medication and reacts so we'll see...

When/ IF God wants me HE knows where I am...

but prayers are always welcomed... I heard a great sermon on line yesterday that said prayers are a "Privilage and a Responsibility" so I appreciate all offers! :)

This too shall pass, as will we all... :notworthy:

Doc,
Just want to say that your Faith and Attitude through all this are truly an inspiration Sir.
All the best,
Paul

Prayers sent Doc.

Quote from: Paul/KS on August 17, 2020, 08:19:23 PM
Doc,
Just want to say that your Faith and Attitude through all this are truly an inspiration Sir.
All the best,
Paul

Paul,

I appreciate those strokes, but am not sure if I deserve them... as the saying goes, "Talk is cheap"...it's easier to type and SAY things then live them and this ole putz has feet of clay for sure! I'm not giving up but I suspect I'm saying what I say to get myself oriented to it and hopefully convince MYself... I surely need the prayers and God's Strength to weather this one...

Hawkeye, I appreciate your comments and prayers as well!

Prayers for you David.  I know that your faith runs deep, and I hope that my prayers can continue to give you strength to keep that faith.  I offer up to Saint Pio, please grant an intercession to David, heal him and make him well.

Al,

I want you and EVERYONE who has posted or offered prayers to know deep down inside how deeply I appreciate your support and concern!  I do, I do, I DO!

None of us know that time we have left, nor do I really want to...

I did get word from an outfit that canvassed the maker of the super expensive oral medication ($2700/month) that I'll get the medication from the MFG for free the rest of this year...

I don't know if my body will tolerate the meds or if they'll do any good, but either way, I appreciate the prayers

Dang it David,

I am always praying for you. May He lay His healing hands on you.9

Thanks, one and all...

Been on the new oral meds for a couple weeks now...seems ok... Got approved thru 2021 I think... kinda a mixed up mess right now but when it ends the free, I quit cause I ain't paying $2700.mo outa pocket to see what's up... I'm told the Lupron shots are covered by medicare.  Just finished 2 1/2 weeks of weekday radiation on the place where it matastasized in the spine... got a chest rash and a sore esophagus from the radiation, but they say that'll dissipate...  :knothead: Que serra, serra...

See Urologist Oct 1 then a medicare physical on 10/2, so we'll see what we'll see... Nobody knows but the Good Lord and he ain't tellin...  :notworthy:

David,

My wife, girls and I are all praying for you.  They (except the littlest one) remember you from the diner in New Holland, and are sincere in their prayers. 

Your friend,
Tom

Thomas,

My memory is not my best friend these days but I do believe I have an email for you Prayers are good medicine!!! At this point, whatever God want will happen with or without my approval so let them prayers roll and we'll see sure enough...

Doc, ya got 2 things going for ya: Great attitude :shaka: and peoples prayers. :pray: So, keep it up great hunter, mighty warrior and wonderful man of God.
Bob

Bob,

I don't know that I deserve any of your three handles, but I appreciate the thought, for sure...

It's grand to see you posting ... Attitudes change as trials unfold but I'm trying to lean on what I've learned

Just saw this. Prayers offered.

Thank you, Tim!

Off to see the Urology doc directly

prayers sent  :pray:

Thank you, Jamish..

By way of sharing, I JUST got a call from the UROLOGISTS' office they re-did my PSA test on Thursday last and called today to tell me its back down well below 0. now...it had been before, then rocketed back up to 12.5 so they did radiation to shrink the tumor, gave me a rash and esophogeal problems for a while, then a LUPRON shot in the butt which I will repeat in DEC and started me on Xtandi, a new drug to replace the Casodex.  i don't wish to be crude but that Casodex medication made my nipples and breasts very sore / tender... It all is a hormone process of 'blocking' the hormones that feed prostate cancer...I am not savvy enough to know if it mean it's blocks or KILLS my testosterone but if it's the latter, I am going to make one pug ugly female! :(

Happy to hear the good news about the PSA test results.  Sorry about the side effects, but as you know, there is always something.  Continued prayers for your well being.  Stay strong, you are not alone in this.  May God work through your doctors hands.

I think that's good news , so hang in there Doc. 
Bob

Could be, Bob, but tis not in my hands or the Docs now...Guess it never has been... :dunno:

Good news on the PSA reading Doc. Mine has gone back up. Oncologist is doing all kinds of test trying to find out why it's going up.  Guess I'll know more after November 9 th unless he orders more test.

That's good to hear that the psa #'s is down for ya Doc.
Stay strong Amigo.  :pray:

Quote from: Lowrider on October 07, 2020, 11:20:52 PM
Good news on the PSA reading Doc. Mine has gone back up. Oncologist is doing all kinds of test trying to find out why it's going up.  Guess I'll know more after November 9 th unless he orders more test.

The one doc, who did the radiation, said that they often yo-yo after that treatment for a while...

Mine went down then back up , They opted to wait a bit and WATCH... Been a wild ride here, too!  Somewhere in that mess, they re-did bone and PET scan and found the "escaped" cells in spine, had grown...after that, the Urologist stuck me on Proscar and Casodex, which made my boobs sore...THEN it shot back up and the URO doc switched to Lupron shots and Xtandi... plus more radiation... and now it's down again... Will it stay down? Dunno...

Rider, I hope they can nail yours down a bit...

They also found the mass after the 12.5 in the spine

No worries Doc.  Even if you end up resembling Caitlyn Jenner those hands will clear up any doubts.  (I met this fine Prayer Warrior once over dinner when my post-retirement employer sent me to Lancaster for training for a few days.  The one thing that stuck in my mind was that I thought I had shaken hands with Sasquatch, lol....and I wear a large glove!)  Prayers still being sent, keep your eyes on the Son.

Hey Dave,
I don't post as often as I used to but still around. Please know you are not forgotten and on the family prayer list.
God's Peace,
Jed

 :pray: :pray: :pray: :pray:

I don't like to step on someone's post but now there are 3 new ones here and I want you all, Rich, Jed and Ron to know I truly appreciate your kind words and well wishes...

Thank you, Gents!

By way of an update...

Thursday late I showered to be ready for an AM Urologist Doc appt.. This time of year my back gets itchy, I suppose from Heat pump dry heat and taking warmer showers???

By Friday afternoon, I realized something was different..

Friday night and all weekend I felt like someone had taken 60 grit sandpaper to my hide on my back and torso...

BY Monday I wanted Answers! Wrong! 

I went in to see the urology doc and laid out my problem..while waiting I called the Oncologist / Radiologist cause areas of sensitivity were the same a a 'Rash" I'd gotten from treatment that they correctly said would go away, but i thought perhaps there was something that occurrs infrequently they didn't mention?

Well, no help there and the URO doc only wanted to prescribe pain med... Nah... He'd confirmed already the new medication I'm on shrinks the "boys" in order to quell Testosterone release the feeds prostate cancer...

What he said was that it all a part of medicinal castration.. DAMN!!

So... it is what it is but neither Doc's office was of any help... At least the Urologist took time to see me amidst a bunch of patients and they were really backed up...

Doc,
  That is down right scary !
Praying they find some sort of relief for you .
 
   

Quote from: Keefer on November 12, 2020, 04:13:55 AM
Doc,
  That is down right scary !
Praying they find some sort of relief for you .
 
   

Thanks, Keith... you're a good and faithful friend... I'm somewhat resigned to just enduring whatever this is at least until the results of the first ever Lymph CT scan (didn't know they were done separate) and my 3rd CT Bone scan...

Only thing I learned from Oncology / Radiology nurse was if there is pain anywhere in the spine it (nerves) wrap around to the front, and the "pain" (feels like someone took a belt sander to my back and belly) is a rawness not totally unlike a bad sunburn..

One older neighbor here said it sounds like SHINGLES, but there is no skin eruptions in over a week...

If the scans (wonder why they waited a YEAR to do a lymph scan?) show something significant, then I have to decide whether or if to continue on this horrific oral med and Lupron shots....

Continued prayers for you and for God to work through your doctor's hands.

Doc I had my Lupron shot last week. Normally they give it in the butt cheek and it knott's up and hurts for about 2 weeks. This time the nurse told me there were two different injections. One for the stomach and one for the butt. I told her the one for the stomach sounded horrible. She said the one in the butt went into the muscle which is what caused it to knott up. The one in the stomach went into fat and that is the one she recommended. I said I have plenty of fat so let's go with it. It burned like heck for about 5 minutes. After that I have had no soreness or problems at all. Something for you to think about. In the meantime know that I am still praying for you and hope things turn for the better. God bless.

Know that I appreciate all prayers!!! I do!!!!  I think that while I got this sandpapered back and belly feeling, the Lupron shot I got last time in the buttock wasn't pleasant but I gently instructed the nurse (cause she'd said it was thick) to inject it slowly so it didn't form a "KNOT" and it only was tender (sorta) that day...

And that was a large dose 4 month shot

Doc, don't think for one second that you are not on my daily prayer list. I have not forgotten. :campfire:

I'd never think that of ya ole Kirk... :):)

Prayers are always appreciated... get 2 new scans (CT done tomorrow) one bone and one that is ostensibly for the LYMPH to see where this cancer is now after several months on this new Xtandi medication...

PSA is DOWN (again) but this soreness of skin and meat around from back to belly has me consternated... NO outbreak, just raw, if it's shingles it's a mild case but the Xtandi does lower ones white count so infection is more likely while on it....